Wednesday, October 27, 2010

Latest Endocrinologist Visit

Saw my endo yesterday. She cut my PTU dosage in half again. I don't feel ready for it but oh well! I was originally on 150mg/day a year ago, now, I'm on jut 25mg/day. I have a feeling I will lose at least 5lbs this week due to the decrease in PTU. She couldn't explain my migraines, she said it could be the PTU (hence trying to get me off it) or just not being hydrated enough. Dehydration? I don't know, sounds like the easy answer.

We talked a lot about what to do if I accidentally get pregnant. Now, we are not planning on it at all but Gary has not had a vasectomy (I was trying to think of a cooler word for it...sorry) yet because we want to for sure have a third child and if it doesn't happen through adoption,we may try for a biological child. Apparently, my Graves' Disease would be less noticeable throughout pregnancy but would likely flare up afterwards. However, mine is a `strange case' so who knows what would actually happen. The greater concern is that my antibodies would cross to the fetus possibly causing neo natal Graves which would last 6 months (until all of my antibodies were out of him/her). The baby would be jittery, irritable, have a lower birth weight etc. It would likely feel how I did last year...wow, that is not good. The baby could be treated with very small doses of PTU and would be constantly monitored with blood tests.

We talked about my muscle weakness. She said that I likely lost a whole lot more muscle than I thought and it will take twice as long to gain it as it took to lose it. She did say, however, that I could return to `normal'. Hmmmmm...that would be freakin awesome. When I exercise, I hit a wall way faster than I ever did but she says it will get better and better. Slow and steady is not really my motto but I guess it is for me now.

Monday, October 4, 2010

Graves' Disease and Mitral Valve Prolapse

I was trying to figure out why I have such a hard time exercising with GD and also, why I get extreme headaches after doing so. I used to work out super hard and never get headaches like I've had the last 1.5 years. I know it could be attributed to dehydration but my urine isn't indicating that:)
I have other symptoms like my heart feels like it skips a beat, sleeplessness, sensitivity to caffeine, and chest pains. Well, a little research shows I may have mitral valve prolapse which is connected to autoimmune diseases like Graves' Disease. There's nothing I could do about it but if that is the case, it's good to know. I know doctors must hate self diagnosers but there is just so much info on the web now.
I see my endo at the end of the month so I will ask her about this. One of my doctors had detected a heart abnormality before but I did not take notice because they didn't seem concerned. I can't even remember what it was. I feel like my level of safe exercising is maybe running 3km. If I have a football game or run 5km, I have a headache that makes me want to vomit for about 12 hours. Not really worth it!!
Oh boy. Fun doesn't stop around here:)